You must never be fearful about what you are doing when it is right.

CONTINUING THIS WEEK LIKE LAST WITH A SHORTENED POST DUE TO OUR MOVE, WITH THE SERIES OF STANDING UP FOR YOUR LIFE.


Hello followers,


Happy Hump Day!

Today is the day, moving day.


And tomorrow the movers will move items that we cannot move ourselves.


Until then, standing up for your health means being a strong self-advocate and an empowered patient.


It means taking a more active role in your care to ensure you or your loved one receive the best care and treatment available.

Why is Self-Advocacy Important to Patients with Rare Diseases?


Just look at Dan and I for example!


Self-advocacy implies that a person makes an informed decision about a matter of importance to her or him and then takes responsibility for bringing about the change necessary to make that choice a reality.

Self-advocacy is a necessity of patients with chronic rare diseases.


Our research has shown that there is a set of activities and skills that empowered patients and strong self-advocates use.

There are essential skills to have if you are to receive your best care and treatment.


These are the things that empowered patients and strong self-advocates do.


Tomorrow, we will go over some of them.

Time is precious and is priceless, so Dan and I will continue each day to pull from a box of 365 inspirational quotes; one quote and share with you.


Today is:


IF YOU SET YOURSELF A GOAL AND WORK TOWARD IT, YOU ARE USING CLOCK TIME. YOUR ARE AWARE OF WHERE YOU WANT TO GO, BUT YOU HONOR AND GIVE YOUR FULLEST ATTENTION TO THE STEP THAT YOU ARE TAKING AT THIS MOMENT.

As Dan and I begin a new year, this is our PHRASE TO REMEMBER; Health is Wealth.


We stand by this and continue to do daily; walk, meditation, and Qigong.


If you would like to follow with us; hash tag words #walk, #meditation #Qigong on the right of the main blog page.

NEVER BE FEARFUL

You must never be fearful about what you are doing when it is right. #mustnever#befearful#aboutwhat#doing#when#right#fearful#inspirational#motivational

#newbeginnings#standupforyourself


Until Thursday, stand up for your life;

If they don’t give you a seat at the table, bring a folding chair.

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